Access to data and bio samples of KORA-gen is granted based on some general regulations:
- A core data set is available to the public.
- Further variables are only made available with consent of the respective data owner.
Bio samples (DNA, serum, plasma, urine)
- Bio samples are generally available, but only while stocks last.
- If the amounts are limited, only restrictive access is possible.
- The samples are usually not handed over to the co-operation partner.
- Analyses are
conducted in co-operating laboratories and genotyping centres of the
National Genome Research Network (NGFN):
- GAC - Helmholtz Zentrum Munich
- University of Köln
- MDC Berlin
- University of Kiel
You can ask for more specific contact data at KORA-gen.
- Genotypes are saved in a collective data bank.
- After several months, they are made available to the public.
Furthermore, there are agreements with the co-operation partner about the appropriation of bio samples and data, which are included in the project contract. These agreements have to be accepted via signature by the co-operation partner upon conclusion of the treaty.
Additional regulations for the NGFN Cardiovascular Network
Within the scope of the Cardiovascular Network of the NGFN, a cross sectional study concerning the utilisation of MONICA/KORA data is conducted. Thus, simplified regulations will apply to network partners with regard to cardiovascular data and bio samples from the co-operative studies LVH-Study (sub-study of S3), MAGIC Controls-Study (sub-study of S4) and KORA B (cardiac infarction - family study). These regulations are currently developed by the steering committee of the cross sectional project.